Abstract
Some chronic diseases — such as the rare bone disease X-linked hypophosphatemia, the impetus for a study reported within Volume 7, Issue 2 of the Journal of Patient-Centered Research and Reviews — are diagnosed in childhood but become more symptomatic in adulthood. In this editorial, the challenges, pitfalls, and opportunities regarding the care of adults with childhood-onset chronic diseases are examined using Down syndrome, cystic fibrosis, congenital heart disease, and Hirschsprung disease as examples.
Original language | American English |
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Journal | Journal of Patient-Centered Research and Reviews |
Status | Published - Apr 27 2020 |
Keywords
- childhood-onset chronic disease
- congenital diseases
- special health care needs
- Down syndrome
- cystic fibrosis
- congenital heart disease
- Hirschsprung disease
Disciplines
- Congenital, Hereditary, and Neonatal Diseases and Abnormalities
- Family Medicine
- Mental and Social Health
- Other Medical Sciences
- Pediatrics
- Primary Care